NJ Center for Tourette Syndrome
Published
June 20, 2019
Location
Piscataway
Purpose
Nurse volunteers needed to distribute medication (a VERY DETAILED protocol and list provided to make accurate distribution a cinch), help make decisions in any emergent situation, and provide a space for participants to "take a break" as needed.
Event Date
August 1-4, 2019
Time Frame
8-hour shifts
Opportunity Location
Middlesex County
Contact Name
Melissa Fowler
Address
604 Bartholomew Rd

Description

NJCTS Tim Howard Leadership Academy Nurse Job Description

The Nurse’s Role

In order for us to provide a safe experience for our participants, Coaches, and staff, we aim to provide around-the-clock nurse services.  Our nurses are volunteers who may have some familiarity with Tourette Syndrome or the commonly associated diagnoses (ADHD, OCD, GAD), OR experience working with teens, but some background on the way TS affects our participants can be provided.

Nurse Responsibilities

  • Pre-Academy (2 hours)
    • Contribute to a “wishlist” of medical supplies to have on hand (these will be provided by the Academy).
    • Review participants’ listed medications and highlight any “red flags” in listed medications, dosages, instructions, etc.
    • Provide feedback for NJCTS staff to place calls to families to clarify questions on listed medications.
    • Provide feedback to NJCTS staff on “medication guidelines” to be supplied to participants and their families
  • During Academy (8-24 hours—your choice)
    • Serve as part of our medical team on hand during participant check-in (predicted between 9 AM- 12 PM on Thursday, August 1) to collect medications, answer parents’ questions, and ask any final questions of families (may include updating medication management spreadsheets on supplied laptop)
    • Be on hand during shifts (which are flexible and will be arranged to meet schedule constraints, but generally 8 hour shifts)
    • Be available to
      • distribute medications
      • address injuries or illness
      • assist staff in making any potential calls for emergency services
      • provide general feedback and guidance to staff for medication-related concerns
      • provide a space for participants to rest or regroup during Academy sessions

You will be provided with a full list of participants’ medical needs, diagnoses, allergies, and any other special considerations in order for you to interact with participants with confidence and security.

  • Possibly be one of two nurses on hand during participant check-out to turn medications over to families (predicted between 1:30-3:00 PM on Sunday, August 4)
  • After Academy (1/2 hour)
    • Provide NJCTS staff with feedback and suggestions for improvement for following year

Background

The Academy is a 4-day program for teens with a Tourette Syndrome diagnosis who are entering 10th grade-entering their freshman year in college all of whom have had varied exposure to and experience with leadership. It takes place at Rutgers Busch Campus in new, state-of-the-art facilities from August 1-4, 2019. Admission is competitive, and approximately 25 students will be selected to attend; in addition 10-15 “Coaches” will be invited to participate; coaches are 20+.  All participants and coaches have a Tourette Syndrome diagnosis and may have one or more commonly associated disorders, including ADHD, obsessive compulsive disorder, generalized anxiety disorder, and depression (though this is not an exhaustive list).

The Academy is built in partnership with soccer superstar, TS advocate, and NJ native, Tim Howard, and represents a collaboration with Rutgers University.  At the core of the Academy is the concept of self-leadership, the idea that knowing one’s strengths, weaknesses, and needs is a key component of individual growth and the ability to thrive.   Each moment of the Academy is carefully constructed to explore and reflect the core goals, values, and themes.

Values, Goals and Mission

The Academy values a climate that is POSITIVE, RESPECTFUL, SAFE, and ACCEPTING.

The Academy’s goals are to instill a sense of:

  • Self Leadership—the ability to know one’s own strengths, weaknesses, needs in order to be one’s best self.
  • Self Advocacy—to recognize what one needs, advocate for it in order to thrive.
  • Resilience—the idea that one can face adversity, obstacles, and difficulties, remain positive and overcome them to emerge stronger.
  • Grit—the ability to “stay the course,” to maintain determination and motivation despite experiences of failure or opposition.
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